Today has been another good day. Our baby girl is doing so well!
This morning she had an echo to make sure her heart function is working as it should. Then the doctors came by for rounds and said her urine output is very good. In fact, she was peeing through her diaper several times a day so they said she could stop the IV fluids. This means she is no longer on any tubes/wires/etc!!
She didn’t sleep as well last night, but still relatively good considering the nurse has to come and do vitals on her every so many hours.
She will be on steroids for at least a month while they wait for the chemo to shrink the tumor enough to take pressure off the spinal cord. Thank goodness! I couldn’t sleep last night while worrying about what would happen when we went home and couldn’t give her IV steroids. They give it orally, which is happening now because she’s no longer on the IV drip.
Alex had a work meeting this morning, so a family friend came by to stay with me for a couple of hours. 🙂 Thank you Debbie! Steve stopped by this afternoon and then Karli dropped in as well. D stopped by with cupcakes for the parents (ie: US!) which was lovely also.
She is now moving her legs even more, this morning I saw some hip action and slight rolling (not all the way on to her side, but more than I’ve seen in almost a week). There is some leg straightening at times, as well, which is very encouraging. There was none of that before, either. And she is so cheerful and happy.
The steroids are making her incredibly hungry so she is eating mountains of food compared to normal. I’m glad to see she seems to be feeling so well and is happy. Nothing better than a happy baby! I do wish she would let other people hold her a bit more. She’s definitely more clingy to me right now and it’s like a switch. Crying with other people (when she’s fussy) but stops when they give her to me. Soo, mama has her work cut out for her.