Tag Archives: Sicknesses

RSV

For those of you unfamiliar with this virus, you can read more about it on the CDC website here.

Here is an exerpt from the CDC:

Visits to a healthcare provider for an RSV infection are very common. During such visits, the healthcare provider will assess the severity of disease to determine if the patient should be hospitalized. In the most severe cases of disease, infants may require supplemental oxygen, suctioning of mucus from the airways, or intubation (have breathing tubes inserted) with mechanical ventilation.

See the flushed cheeks? :( At home before leaving.

See the flushed cheeks? 😦 At home before leaving.

I think you can guess where this is going…Madeleine came down with RSV last week. I was away on business Tuesday and Wednesday. On Wednesday, Alex kept her home from school because she was pretty sick. Wednesday night, after I got home, she was up off and on all night and started to spike a fever. When I woke up in the morning, she was still passed out asleep in our bed – we let her sleep with us because she was having such a hard time sleeping. This was at 8:30 am! An hour after she normally would be up and bouncing around, she was still completely passed out. And hot. So I took her temp and she’d spiked a fever of 102.4 overnight. Just looking at her while she was laying there sleeping, she was breathing very rapidly and each breath was really shallow.

Upon arrival to a room at Urgent Care

Upon arrival to a room at Urgent Care

I immediately called her pediatrician to try to get her in. When they didn’t have openings until the afteroon, I got ready and loaded her into the car to take her to urgent care. She was extremely lethargic and sleepy. In fact, she kept passing out in her wheelchair when we wheeled her down to x-ray to get a picture of her lungs. For those of you who know her, this is really not like her at all. By 11am we had a diagnosis of pneumonia and were headed to Children’s Hospital by noonish. Alex met us at urgent care after I called to tell him it was pneumonia and she might need to be hospitalized.

Because of her previous surgeries in/around the lung cavity, urgent care couldn’t discern exactly what was going on with her breathing and pneumonia.  Seattle Children’s has all of her previous x-rays and MRI’s and would be able to compare the old x-rays to her current for a better diagnosis. Because of how lethargic she was, they rushed us through the intake process and back to an ER room.

Passed out waiting for her X-Rays

Passed out waiting for her X-Rays

Back in the room at Urgent Care awaiting information from the X-Rays.

Back in the room at Urgent Care awaiting information from the X-Rays.

Cozy in the car - arriving at Children's.

Cozy in the car – arriving at Children’s.

On a side note: Can I just say that I would like to stop being rushed through the ER at Children’s? That was actually a little bit traumatic, and I didn’t expect it to be. The last time we were rushed in like that, M was diagnosed with cancer. Each room I passed that we’d been in before, I had a flashback to a moment when we were there during her cancer diagnosis and it was extremely overwhelming. I was in tears by the time we got to our room and once we got there tears were streaming down my face, Alex took M and I just broke down. Having a sick child is scary! 

WP_20121220_031

Passed out on daddy in the ER.

She was awake for about 20 minutes, had a small snack and played with some stickers before getting super tired again.

She was awake for about 20 minutes, had a small snack and played with some stickers before getting super tired again.

Tired! Everyone was so tired!

Tired! Everyone was so tired!

We spent about 8 hours in the ER. They spent a good long while monitoring her oxygen levels. They also compared the x-rays and determined she did indeed have pneumonia, but we caught it pretty early so it wasn’t too bad yet. And they took a nasal swab and throat swab to see if there was anything else going on. That is how they found the RSV infection. For a couple of hours, they kept saying they were going to send us home with antibiotics, but I wasn’t super comfortable with that. Per urgent care and the ER, they wanted her O2 levels no lower than 92 while awake and 88 while sleeping. She kept dipping down to 86, even while awake. So when they kept discussing discharging her, I pushed back a little bit and asked about her O2 levels. The last thing I wanted was to go home where I had no idea what her O2 levels were and have her get worse. Once they realized that her O2 levels were actually dropping and not getting better, they decided to admit her. That was at about 7pm (5 hours after we first saw the ER doc). It then took another 3 hours to get to a room for the night because they had to consult Hem Onc and her Pediatrician.

Snack before bed time

Snack before bed time

Madeleine was put on oxygen and had an IV put in for fluids because she wasn’t really eating and was also not drinking well at all. We went on a super fun “ride” through the hospital on our hospital bed, which Madeleine actually seemed pretty thrilled with and then settled into our room for the night. We all ate a bit, got cozy, checked in with our nursing team and tried to get M to bed. At this point it was nearly 11pm and way past her bedtime.

Alex was kind enough to offer to let me go home and sleep for the night. I’d had less than 8 hours of sleep in over 48 hours and was sick myself (with the same thing!). So he cuddled up with M and I went home to get some rest so I could get better, too. 

She always wanted one of us to cuddle her to sleep. So sweet.

She always wanted one of us to cuddle her to sleep. So sweet.

While I was gone, she had seen some improvement and was taken off of the oxygen, which was great! Evidently she was still up off and on all night, but that’s to be expected in the hospital with nursing staff coming in to check and take vitals every so often.

I arrived back to the hospital the next morning to a super bouncy girl. Check this out!

Hi Mommy!!!

Hi Mommy!!!

 While things were back and forth over the course of the 2nd day, ultimately, she had done a bit better. She was going to the bathroom again, because of the IV fluids and had spiked a fever in the morning. So we had to wait for 24 hours of fever free and to be able to drink enough fluids to not need the IV. That ended up taking the next 24 hours, but her mood was vastly improved from the previous day! 🙂 She was a complete goof during this 2nd day in the hospital. Fascinated with her fancy motorized bed, wanting to play and talk and read and was back to eating somewhat decently.

Look at my face!

Look at my face!

Time for a nap!

Time for a nap!

See that pouty lip?? My goodness!

See that pouty lip?? My goodness!

After a few minutes, she cheered up a smidge.

After a few minutes, she cheered up a smidge.

Later that mornnig, we were released to go home! Madeleine was doing so much better, we had antibiotics just in case she had pneumonia (the doctors never were 100% certain) and were scheduled a checkup at her PCP clinic for Monday.

So: If you made it through this entire post, thank you! She is doing much better now. Still on antibiotics, but fever free, back to normal activity and back to school again. She is no longer contagious, so we were able to alter our Christmas plans a bit so she could still celebrate the holiday and see family. I am so glad I took her in when I did, given how severely her O2 had been affected.  Now, if we can just avoid the hospital, aside from regular check-ups, for the next few years, I will be happy. 😉

1 Comment

Filed under Uncategorized

Yet another surgery is scheduled

You may remember me posting about Madeleine having a battle with pink eye. Since then, she has had 5 total infections, and we finally got referred to an ophthalmologist at Seattle Children’s. We met with her last Friday and she said that it was very clearly a blocked tear duct. No big shocker to us, since Alex had the same issue as a child and it seemed to me that the infections were a larger issue than just infections. No child gets infection after infection after infection when no other kids have pink eye.

Waiting for the nurse to take us back

So, we had two options. Surgery next Monday (August 29th) or wait until the middle of October. I really don’t think it’s good to wait until October, which the ophthalmologist agreed with, so we opted for August 29th. This is not great timing for a multitude of reasons, but it will have to work.

The doctor will go in and scope her tear duct and tear drainage line (real technical term, right?) down her nose. She’ll then insert a stint to keep the duct/line open while she heals. That will get removed after a couple of months. From there, her eye should drain just like everyone else’s. Her eye has never really drained normally, so Alex and I have fully expected this at some point.

Look what a good color-er she is! 🙂

Expected recovery time is 1-2 days. It’s a fairly quick, out-patient procedure and the doctor said she should be feeling back to normal by that evening. If not, she definitely will the next day.

So, keep her in your thoughts next Monday. I don’t have the details behind surgery time and check-in for anesthesia, but they expect it will be early morning.

Who would guess this little girl has been through so much??

3 Comments

Filed under Uncategorized

The Spotted Girl

Since Madeleine has started day care she’s had 2 colds and 2 cases of pink eye. This last cold was a doozy and she brought it home to me. Hooray! (…not…) I can speak from experience, it was horrid. It’s now been 2 weeks since I started coming down with it and I am still coughing. Gross.

Along with this cold came another pink eye infection, for which I took M to the doctor. As with the first case of pink eye, the drops did not work. So, in anticipation of this, the doctor prescribed an oral antibiotic to fill if the drops didn’t work. I had that filled on 6/30. All was well and good. Her eye infection cleared up and then on Thursday night, I noticed funny little spots on her knees. So I started inspecting her. And I saw more spots on her legs, but nowhere else. I thought maybe she’d gotten mosquito bites. They were small and red, but not raised. So then I started thinking that she had gotten chicken pox. Hmmm….I called the 24 hour nurse line for her pediatrician’s office and waited for a call back.

We had dinner, she had her evening dose of her medication and then we started getting her ready for her bath. At which point the spots had spread to two on her face and more down her side and around her arms. Luckily, after her bath, the nurse called back. She said that it could be an allergic reaction to the medication and she needed to be seen ASAP. So off we rushed to Seattle Children’s Bellevue Urgent Care. When the doctor had me undress her to see the spots, there were even more! This is where it was confirmed that it was indeed a reaction to the medication she was on. The doctor said it was hives. We stopped use immediately.

Friday morning, Madeleine was even worse. Her poor face was covered in spots. Her entire body had spots all over, and they were larger. No longer small red spots. Now some of them were the size of a silver dollar. 😦 Poor baby!! So I scheduled an appointment with her regular pediatrician. He confirmed that it was a reaction to the medication, but not an allergic one. It is called: Erythema Multiforme which presents with target lesions (red on the outside, lighter colored in the middle and as they get worse, they develop a brighter red inner ring. Thus the term “target lesion”, because it looks like a bulls-eye.

 Unfortunately, there is nothing that can be done to remedy the lesions, except to stop use of the drug which caused them.  Friday, she was in a pretty sad state. But by Saturday the spots were already fading and by tonight you couldn’t even see most of them anymore. She is doing much better now, thank goodness!

Just another medical bump in the road, and now we have to make sure that all of her medical records get updated with this information so that nobody prescribes her any medications in the amoxicillin family.

1 Comment

Filed under Uncategorized

The Pink Eye Battle

I knew that when Madeleine started daycare, she would be exposed to all sorts of germs. I knew she would probably get sick and have to miss a day here and there. I did not know that this first sickness would be pink eye which would keep her out of daycare for four days.

Luckily, it started on a Friday and the daycare didn’t initially think it was pink eye, so they didn’t send her home that day. But by Saturday morning, it was quite obvious she needed to go to the doctor. It also was handy that her regular pediatrician happened to be working that Saturday. The doctors rotate at the Bellevue Saturday clinic, so his presence was not necessarily guaranteed. She was feeling just fine, aside from the eye issue and ran all over the waiting room. See?

Checkin' out the fish tank

See what a mess? 😦

Anyhow, she was diagnosed with pink eye and prescribed drops. After waking up from her nap that afternoon, her eye was a mess. It had gotten swollen and even more goopy and just, ick. Thanks to timing, we had been unable to get her prescription filled before her nap, so we went after she finally got up. Sunday, while still goopy, her eye was definitely not swollen anymore and we thought she was on the mend. Her ped told us that after 24 hours on the drops, she’d no longer be contagious. What great news! This meant no interruption to daycare.

Except that after Alex dropped her off on Monday, they called him and had him pick her up again because of the goopiness. Evidently, she cannot go back to daycare when her eye still looks that way. ***sigh*** So we waited it out through Monday and then on Tuesday it started looking better. Until Wednesday when it started looking worse again. Alex took Wednesday off of work (his days off are Sun/Mon/Tues, so the other two days were fine) and I took Thursday off so I could take her to the doctor. Again.

Her daycare was great, and offered the option that if we took her back to the doctor and got a note saying she was noncontagious and suitable to go back to daycare, that they would allow her back. Oye! So back we went. Again, with the running around the waiting room and acting like absolutely nothing was wrong.

Her doctor determined that she actually had a secondary infection from allergies (which I guess is common?) and that’s why it got better and then worse again. She also had an ear infection developing, so she’s now on an oral antibiotic to clear it all up, and it is working. Her eye is looking much better now, so that is good. She’s also back in daycare, which is also good since both Alex and I are in new work positions and can’t be taking all this time off.

Exhausted after we got home

1 Comment

Filed under Uncategorized

Sick house

We officially have a sick house.

I came down with a cold about 2 weeks ago, but was over it by the end of the week. Now, suddenly, Madeleine has a cold, I have a cold and Alex has a cold. What a pain in the neck!!

Add to it that Madeleine was finally able to get her vaccinations (5 shots at one time!) so she was feeling pretty darn miserable for a couple of days because of that, too.

This has induced lots of cuddle time and family movie time, seeing as how none of us feel all that great. I’m not complaining about cuddle time, though. Because – you see – Madeleine has never been huge on the snuggling front. So when we get these rare opportunities to cuddle, we take full advantage. 😀

At the beginning of it

She woke up very, very sad one morning

Chilaxin'

😦 It was a very sad and pathetic moment. Although daddy seems to be enjoying it. LOL

1 Comment

Filed under Uncategorized

Madeleine’s 2nd ER Visit

On February 20th, Madeleine took her second trip to the ER. You see, she’d been awfully backed up (in the digestion type of way) for a few days.  On the 19th I gave her juice with lunch in the hopes of getting things moving. I thought it’d worked, as she had a number of bowel movements that day. But on Sunday she was all backed up again, and when she finally did go that night – there was a lot of blood. A lot. 😦 So I called her pediatrician’s nurses line to see what I should do and they directed me to the ER. Off we went!

Alex had homework he had to finish, so my parents went with me so that I wouldn’t be alone.  It was actually nice, because once the charge nurse came out to note down the details of why we were there and I told her she was a hem-onc patient, they rushed us back to a room. 😀 As Alex said later “That’s good. I think we’ve earned it.” True! It was especially nice because there were TONS of sick kids in the waiting room.  A huge rush came in right as we did, so we were only waiting before being taken back for about 15 minutes, max.

After being examined by a med student and two doctors, we were released with a prescription for Miralax (which we already have because of the constipation that happens during chemo) and told to keep her bottom VERY clean to prevent any infection. She had tears, aka fissures, down there because of all of the straining. 😦

So, while sad, they said that it is not uncommon in babies and they weren’t concerned. Phew! See?? I told you it wasn’t a big deal!

Sooooo tired (since it was 9:30 or 10:00) that she slept on the way home.

The only real bummer about the ER is that those 15 minutes exposed her to a yucky cold, so she has had her first official cold! It’s brought a nose that runs like a river, a little cough which is now breaking up and just general grumpiness for a few days. Overall though, she’s doing just fine!

During the height of the cold, M cuddled with daddy while watching a movie.

And again...daddy and baby were both feeling yucky

1 Comment

Filed under Uncategorized